Unknown
Last week's injection went okay without too much reaction. I was very achy about 10 hours later (instead of the 12 hours later last week).  By Sunday I was almost back to normal.  This week, however, was a different story.  

I had my injection at around 9:30am on the 13th, and aches set in early afternoon, much sooner than previous injections.   Friday night I took Advil PM, but it did not help me sleep, nor did it help with the aches.   I was feeling fairly nasty all Saturday.  We had a family get-together Saturday night and I managed to pull it off, basically pushing myself to be "involved".  Nausea set in late evening.

Again, I took Advil PM last night and hoped for a good sleep, however, even with taking Advil AND Tylenol, I was up most of the night in pain with nausea.  This morning, it was just worse.  This has been a new experience, as the symptoms seem to be continuing and worsening, rather than going away as before. This concerns me, especially since I'm still at half-dose.   I can't imagine doing this for 6+ months, waiting for my body to accept the Avonex and stop nailing me with the flu-like symptoms.   It makes me mad that I have to toss half of my upcoming year away to feeling sick, just on the hope that it might slow down the disease progression.  I know my family isn't enjoying me laying around all the time.
Unknown
I woke up not knowing whether I still felt super achy after my first Avonex injection or whether it was just my normal self (I usually feel body aches much like a flu).   Got up and went to church and managed to focus through most of the sermon.  After the service was over, a couple came and prayed for me.  It was refreshing.

Disabilities are difficult. When you first get diagnosed, many people surround you and support you, but as the disability continues and/or worsens, many do not know what to do or how to respond and often avoid you.  A lot of times it's just that they feel uncomfortable, and it's easier to avoid you rather than to feel awkward in conversation.  It’s been quite some time since anyone has offered to come and pray for me.   I struggle so much with faith, as I feel so defeated.  At this point it needs to be the faith of others to pray for what I can only remotely dream of.  


 


Song Lyrics

This is not how it should be
This is not how it could be
This is how it is
And our God is in control

This is not how it will be
When we finally will see
We'll see with our own eyes
He was always in control

And we'll sing holy, holy, holy is our God
And we will finally really understand what it means
So we'll sing holy, holy, holy is our God
While we're waiting for that day

This is not where we planned to be
When we started this journey
But this is where we are
And our God is in control

Though this first taste is bitter
There will be sweetness forever
When we finally taste and see
That our God is in control


And we'll sing holy, holy, holy is our God
And we will finally really understand what it means
So we'll sing holy, holy, holy is our God
While we're waiting for that day

We're waiting for that day
We'll keep on waiting for that day
And we will rise
Our God is in control

(Holy, holy, holy) x2

Our God is in control

(Holy, holy, holy)

Our God is in control

(Holy, holy, holy)