Diagnosis with MS - how does one successfully navigate that devastating blow? With lots of patience, support from loved ones and God's grace. This is my documented journey on the road to liberation from the grasp of MS -- from CCSVI treatment to the redefining of my character. My prayer is that one day I will hear "Well done, my good and faithful servant". (Matt. 25:23)
Last week's injection went okay without too much reaction. I was very achy about 10 hours later (instead of the 12 hours later last week). By Sunday I was almost back to normal. This week, however, was a different story.
I had my injection at around 9:30am on the 13th, and aches set in early afternoon, much sooner than previous injections. Friday night I took Advil PM, but it did not help me sleep, nor did it help with the aches. I was feeling fairly nasty all Saturday. We had a family get-together Saturday night and I managed to pull it off, basically pushing myself to be "involved". Nausea set in late evening.
Again, I took Advil PM last night and hoped for a good sleep, however, even with taking Advil AND Tylenol, I was up most of the night in pain with nausea. This morning, it was just worse. This has been a new experience, as the symptoms seem to be continuing and worsening, rather than going away as before. This concerns me, especially since I'm still at half-dose. I can't imagine doing this for 6+ months, waiting for my body to accept the Avonex and stop nailing me with the flu-like symptoms. It makes me mad that I have to toss half of my upcoming year away to feeling sick, just on the hope that it might slow down the disease progression. I know my family isn't enjoying me laying around all the time.
I
woke up not knowing whether I still felt super achy after my first Avonex injection or whether it was
just my normal self (I usually feel body aches much like a flu). Got
up and went to church and managed to focus through most of the sermon.
After the service was over, a couple came and prayed for me. It was refreshing.
Disabilities are difficult.
When you first get diagnosed, many people surround you and support you,
but as the disability continues and/or worsens, many do not know what
to do or how to respond and often avoid you. A lot of times it's just that they feel uncomfortable, and it's easier to avoid you rather than to feel awkward in conversation. It’s been quite some time
since anyone has offered to come and pray for me. I struggle so much with faith, as I feel so defeated. At this point it needs to be the faith of others to pray for what I can only remotely dream of.
Song Lyrics
This is not how it should be This is not how it could be This is how it is And our God is in control
This is not how it will be When we finally will see We'll see with our own eyes He was always in control
And we'll sing holy, holy, holy is our God And we will finally really understand what it means So we'll sing holy, holy, holy is our God While we're waiting for that day
This is not where we planned to be When we started this journey But this is where we are And our God is in control
Though this first taste is bitter There will be sweetness forever When we finally taste and see That our God is in control
And we'll sing holy, holy, holy is our God And we will finally really understand what it means So we'll sing holy, holy, holy is our God While we're waiting for that day
We're waiting for that day We'll keep on waiting for that day And we will rise Our God is in control
